Let's rewrite the
Disability Narrative together!
Publications
Peer Reviewed Publications
Occupational therapy and congenital upper limb differences
Published: April 2024 in Let's Talk DEI: OT Practice
Authors: Sarah Tuberty; Amber Jenkins, Laura Faye Clubok, Natalie Grazian, Madelyn Hubbs, and Olivia Levchak
Article Synopsis: "Learn language and hot topics when working with clients and co-workers from the congenital upper limb difference community"
Self-Concept Development in Children with Limb Differences: A Scoping Review. (Journal Article)
Published: January 2023 in the International Journal of Orthopaedic and Trauma Nursing
Authors: Sally Martens, PhD, FNCP; Sarah Tuberty, OTD, OTR/L; Michelle James, MD
Article Synopsis: "The findings of these studies indicated that the social environment directly impacted the development of psychopathology and self-concept in children with limb differences. This review demonstrated a need for a gold standard instrument with which to assess children's self-concept."
The Hand Book: An informational Guide for Parents of Children with Hand Differences
Published: October 2022 by American Society for Surgery of the Hand
Authors: Nina LIghtdale-Miric, MD; Sarah Tuberty, OTD, OTR/L
Overview: "The Hand Book is a unique and much needed guide for knowledge-seeking parents of a child with a hand difference. The Hand Book follows you through your personal journey of understanding the science of hand differences. It offers support as you cope with the news of your child’s hand difference at birth, make medical decisions, enroll your child in school, prepare your child for living independently as an adult, and everything in between."
ISBN: XXX
Caring for children with congenital upper extremity differences.
Published: September, 2021 in The Journal of Hand Surgery
Authors: Nina LIghtdale-Miric, MD; Sarah Tuberty, OTD, OTR/L; Danielle Nelson, PhD
Abstract: "The purpose of this article is to provide information about the changing landscapes in research, treatment, civil rights' protection, disability awareness, and accepted terminology in the care of children with congenital upper limb differences. This knowledge can guide clinical and nonclinical conversations between patients and their families."
Burns (Resource Page in TextBook)
Published: 2019 in the Willard and Speckman's Occupational Therapy 14th edition Textbook Published by Wolters Kluwer
Authors: Sarah Tuberty, OTD, OTR/L
Resource Synopsis: Respource page provided up to date terminology and classification for burn conditions and severity as well as possible theraputic interventions.
ISBN: 9781975219062
Conference Presentations
Keynote Speaker: Ableism: Exploration of Terminology, Stigma, and Patient Perspectives
Presented: May 2023, World Symposium on Congential Malformations of the Hand and Upper LImb
Location: In person, Minneapolis, MN
The Unique experience of congenital upper limb difference in the Aerial Arts
Presenters: Dana Sheng, MD and Sarah Tuberty, OTD, OTR/L
Presented: June, 2021 at the Performing Arts Medical Association
Location: Virtual, New York, NY
Psychological impacts of congenital hand differences
Presenters: Sarah Tuberty, OTD, OTR/L
Presented: April, 2021 at the Pediatric Hand Study Group
Location: Virtual, Chicago, IL
Disability and the Aerial Arts
Presenters: Sarah Tuberty, OTD, OTR/L
Presented: October, 2020 at the District 5495 Interact Fall Leadership Conference
Location: Virtual, Prescott, AZ
Camp Winning Hands
Presenters: Sarah Tuberty
Presented: February, 2019 at the Pediatric Hand Study Group
Location: In Person, Denver, CO
Super-Abled: Disability Representation in Comics, Movies, Games, and More
Panel Members: Travis Rivas, Angel Giuffria, Jay Justice, Trace Wilson, Sarah Tuberty, Jennifer Kretchmer
Presented: July 2019 at Comic-Con
Location: In Person, San Diego
Creative Works
Chiara: Dancing in Darkness apart of the Super-Abled Comic Anthology
Author: Sarah Tuberty
Artwork: Mauricio Campetella
Published: 2019 by Accidental Aliens
About: When a sentient virus takes over a small country and tries to eliminate anything that’s different, Chiara must use her powers to save her best friend.
Accidental Aliens: Super-Abled Comics
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Grants, Scholarships, and Awards
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Virginia Chandler Dykes Scholarship Award 2023-2024
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World Symposium on Congenital Malformations of the Hand and Upper Limb Keynote Speaker Grant 2023
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Virginia Chandler Dykes Scholarship Award 2022-2023
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Challenged Athlete's Foundation Grant 2021
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PEAK Award- Person of Extraordinary Achievement and Kindness, 2019 Children's Hospital of Los Angeles
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Brookline Rotary Grant to Attend the InterRota Taipei, Taiwan Conference 2017